Monday, January 25, 2010

signing off...

This past Saturday morning I saw my OB/GYN at our kids basketball game. I told him I had gotten an awesome report at the liver specialist. He said he already knew because Dr. Galati had told him. Apparently, he saw a miracle and had to tell someone.

The dictionary defines miracle as "an extraordinary event attributed to some supernatural agency." But I know better...I know that is attributed to One: God. At the bottom of all of my emails I put "Expect miracles!" I was expecting a miracle in overcoming my illness and I birthed it - with God and my faithful prayer warriors on my side!

I will greatly miss doing this blog. At first I had my reservations. After all, my first words posted were "Let's give this a try..." My natural personality is to keep things private so it was a bold step for me to write my feelings for all to see. But to see your responses and your prayers was a boon in the midst of my sadness. Being able to share my new outlook on life was refreshing. So that is why I write this last post with great trepidation.

Please know that one of the many, many things I have learned in this process is how important it is to pray and help others in their time of need - just as you all have. I, too, want to "Practice Aloha" in my everyday life. With this in mind, please email me prayer requests or any such matters at dwtrozzo@aol.com.

I do still ask for your prayers: While there is no such thing as remission for my disease, I can continue to work and pray hard that I idle (or get even better) in this stage. I will continue on my diet, take my medications and take care of my "temple" so as not to relapse.

I know that I am one of the lucky ones. All your hard work as my prayer warriors will not go to waste. God obviously has more for me to do here on earth. "I am confident that the good works God has begun in me will be perfected." (Phil. 1:6)

Thank you!

Thursday, January 21, 2010

a beautiful day today

I all honesty I am still trying to absorb the results from my doctor's appointment, which is why I have not written on my blog. I do intend to spend some time with it and the write on my blog - probably for the last time.
Many have asked what the doctor said, so I will go ahead and fill you in on that:
1) It appears that my liver has done some regeneration. They do not know the extent of it until they run a scan in 2 months.
2) I will remain on all my medications.
3) I am still on a restricted diet.
4) I will have bloodwork taken every 6 weeks now instead of every 2 weeks.
5) I do not have to see the doctor again for another 4 months.
6) I do not have to have a liver transplant! I am not even on that radar anymore. I don't even have to see the transplant psychiatrist anymore.
7) I can travel anywhere - even Europe in August! I have to practice Aloha in the islands soon and the only time I can get away without missing the boys sports is spring break (and I am not sure we can all get reservations at this late date). Clay and I are planning a 3 day getaway in 2 weeks - probably somewhere warm in southern Florida (anybody have any suggestions?).
I will write more at a later time. In the meantime, remember to continue practicing aloha!

Wednesday, January 20, 2010

Which beach do I pick?

I am all clear: don't need a liver transplant at this time nor in the forseeable ffuture. And I can travel...details to come another time...
Thank you for your prayers!

Saturday, January 16, 2010

A worry wart???

Wednesday will be my "big" doctor's appointment. I have not seen Dr. Galati in 2 months - and that is good because it means my bloodwork is showing good results.

I intend to ask the big questions: "Do I still have to have a liver transplant?" "May I travel (please!!!)?" "May I try to live my life as normally as possible (with the obvious dietary restrictions and medications?" "May I make longterm plans?"

I am naturally a worry wart (where the heck did that phrase come from?). But I read something in Jesus Calling this morning that I intend to repeat to myself this week every time I get scared about my doctor's appointment:
"Rehearsing your troubles results in experiencing them many times, whereas you are meant to go through them when they actually occur."
"I will strengthen you and prepare you for this day, transforming your fear into confident trust."

I am posting this today because I may not get back to my blog until the appointment. I will probably put up some posts while at the doctor's office (yes, Clay came through on our anniversary and upgraded my blackberry and got me a netbook).

"But when I am afraid, I will put my trust in you. I praise God for what he has promised. I trust in God, so why should I be afraid?" Psalms 56:3-4

My appointment is this Wednesday, January 20th at 1:45 Central time.

Thank you for your specific prayers!

Thursday, January 14, 2010

Thank you, Clay!

In all of my blogs, I believe I have neglected to write much about Clay. The spouse is often "the forgotten one" in a situation such as this. All focus is on the sick one. However, I believe that what they may be going through may be as hard, if not harder.

All sorts of things come into play in a marriage when one comes down with a life-threatening illness. The sick one is often depressed, moody, introspective. We who are sick go from not wanting to talk about the illness at all to not shutting up about it and letting it invade every conversation. Plainly, we are focusing all our attention and energy fighting the disease, while sometimes forgetting our spouse needs us also.

Roles have changed in that Clay has to be the nurturer. Imagine having to take over "mommy duties" while still having to make a living (think medical bills). "...when men become care givers, they often don't ask for the support they need because they may be too stoic,' said Betty Ferrell, a nurse-researcher at City of Hope National Medical Center in Duarte, Calif. Men 'really do feel the financial burden. They feel they must try to keep things normal, to keep going to work'.''

The spouse hurts too. I have tried my best to help Clay. To say that all of your prayers and words have encouraged me, please know I have, hopefully, shared it all with Clay.

In a popular hospital drama on television, a divorced man with children was dying and needed to make some major medical decisions. His ex-wife came in and helped him make this decision and spent all her time with him - not his current wife. When the major surgery was over and he lived and he was recovering nicely, the doctor was surprised to see the current wife, not the ex-wife, tending to him now. He inquired about this and the patient said: "There are those you want to live with and those you want to die with."

I choose Clay to live and die with!

Clay - I am so thankful God brought us together 15 years ago today. Happy Anniversary! P.S. Clay - I sent this blog out early this morning so you would have time to go shopping! :):)

Monday, January 11, 2010

I think I can, I think I can

Thank you all so much for all of your prayers!
"The blessing and the hope and the power and the glory belong to the One on the throne, and to the Lamb forever and ever." (Rev 5:13)


This past Thursday I began a downhill trek on this mountain. I finally have been feeling like the old me - only better: a renewed self. I finished a couple of books and began new ones, including 2 that had the same quote that really appealed to me: "We will nobly win or meanly lose this last great hope on earth." (Abraham Lincoln wrote this about America in a letter to Congress shortly after the creation of the Emancipation Proclamation.) I have been attending all the boys events with vigor, exercising (albeit I have a long way to go in this area), taking naps sparingly, running errands, and working on some other things that will fulfill God's purpose for me.

However, let me be clear. I fully realize this journey is a mountain range and not just the one mountain. Any day I could hit a another mountain, a small hill or just a bump - or even a higher mountain. I will keep in mind: "Give thanks in all circumstances, for it is God's will for those in Christ Jesus. (I Thes 5:18)."

I have an appointment with my doctor next week and pray it goes as well as I feel because "I am confident that the good works God has begun in me will be perfected." (Phil. 1:6) I am not yet finished with my work!

By the way, all the quotes above are from memory. After writing on my blog about my memory problem I decided to make flash cards for myself. Sounds rather elementary, but I have to take baby steps in this new life of mine.

Tuesday, January 5, 2010

Remember that line?

What was a favorite gift you received this year? I mean other than the wonderfully obvious ones like: spending time with your family, your health, and just, in general, celebrating the birthday of Jesus Christ?

One of my favorites was a book Clay gave me: West with the Night. On the back of the book a portion of the review reads: "...written so well, and marvelously well, that I was completely ashamed of myself as a writer." Who was the reviewer? Time magazine? John Grisham? James Patterson? Ken Follet? No! Ernest Hemingway! So you just have to know it is must be great...and good 'ole Ermest has not let me down.

I have always loved reading. At any given time, I am reading at least 5 books at once. When I leave the house, I always take a book, my blackberry, my credit cards...AND my Barnes and Noble frequent user card.

A highlighting pen is a necessity. I love to be able to reread what I believe to be important. Additionally, there are some lines so significant I like to memorize them (and isn't this especially helpful when reading the Bible so I can be ready with my sword?).

One of the side effects of liver disease and the medications are memory problems. Mine tends to lean towards short term memory. This has really put a hinderance on my pleasure of reading because I have trouble not only remembering specific lines - but with titles of the books, major characters, etc. My family loves trivia games and it is really hurting my scores too! :):)

Seriously, I do ask that you pray for my memory. I have been given the option of a medication but its side effects sound like those horrible television commercials that spend 3 minutes talking about how the pills can cause yada, yada, yada and "even lead to stroke and heart attack." Right now I am trying a doctor's suggestion of eating yogurt with live cultures - but I am not sure that is doing much good.