It has been a while since I have posted. I have been overwhelmed - both good and bad.
Bad - still not getting much sleep. Not much sleep leads to not getting things done - which leads to items I need to do get caught up on. Do I sound like a broken record?
Sleeping pill - here I come tonight!
I emailed a friend this morning and she said, "I am so sorry...insomnia is horrible. Don't feel guilty about sleeping during the day....you cannot maintain your health without sleep. It isn't a luxury...it is required." I think I am going to write that on a post-it note on my vanity.
Funny side story: At Memorial Hermann Hospital (the first one) my doctor came to check on me in the because I had the afternoon off from any procedures and had some free time. I told him I was having someone from the spa come and give me a hand and foot reflexology massage and a manicure. He laughed and said , consider yourself a "Lady of Luxury" now. The entire floor of nurses, etc. did not even know they had a spa where people would come to your room and give you a treatment!
Which leads me to the good - I am overwhelmed by the amount of people who have sent encouraging comments on my blog and via email and sent me cards and flowers and edible arrangements, etc. - not to mention the meals. Thank you all so much! Please know that your thoughts and prayers are truly cherished. Along those lines, please bear with me if I have not responded to an email or something yet. I am looking at my AOL account now and I have 927 emails I need to respond to and intend to attack tonight (and some that I would like to pray over before responding).
Life Application Bible: In the notes of Mark's profile, it says under lessons from his life, "Encouragement can change a person's life."
New Living Translation: Hebrews 12:1 "Therefore since we are surrounded by such a huge crowd of witnesses to the life of faith, let us strip off every weight that slows us down, especially the sin that so easily trips us up. And let us run with endurance the race God has set before us." Notes from the Life Application Bible about this Hebrews verse: "Others have run the race and run and their witness stirs us to run and win also. What an inspiring heritage we have!"
P.S. Praise: found my Jesus Calling book!
Sunday, September 27, 2009
Friday, September 25, 2009
complaining
I am having one...please pray. I was so tired after feeding boys this morning I slept until 11am and still tired. I cannot find my Jesus Calling devo book or my to-do list. I can understand the to-do list because God may just want me to sit - but my devo book?
I to do some normal things:
1)go buy something but Clay would not approve (which is understandable).
2) go to a nice dinner where the chef understands my limitations.
3) so many other things...
I am sorry to vent but it is one of those days.
I to do some normal things:
1)go buy something but Clay would not approve (which is understandable).
2) go to a nice dinner where the chef understands my limitations.
3) so many other things...
I am sorry to vent but it is one of those days.
Thursday, September 24, 2009
The Greek/Turkish Bracelet
I have been waiting to write this post for weeks (but other things got in the way and maybe it was just God's right timing). I am writing about this subject because my DQT revealed some new things to me this morning about my story and hopes of Greece and Turkey - just as many verses and books I have happened on in the last few weeks have done.
In my devotional book today called Streams in the Desert (don't you just love that symbolism?) the main verse is Acts 16:7: "When they came to the border of Mysian they tried to enter Bithynia, but the Spirit of Jesus would not allow them to."
Admittedly, I thought, "what in the world? How can they make a good lesson out of this verse?" A friend gave the book to me at the hospital on Sunday and is a true scholar of the Bible. Maybe he mixed the book up with one he was supposed to give it to - a friend that has much more insight into the Bible.
Seemed a pretty negative verse to me - after all Paul and his friends were just trying to get to the next destination to spread God's Word. What struck me was that Paul was mentioned -yet again popping up in my readings and thoughts. An example of this is from Twelve Extraordinary Men: He was not one of the 12 disciples but was an apostle He was an apostle "born out of due time." I like that.
All of this to get to the point of my fascination with Paul and his connection with Greece and Turkey:
We went on a family trip (Clay, me, Jared and Payne, my parents, and my brother and his family) to Greece and Turkey at the beginning of August. I should have had a wonderful time, but I could not. This was when the disease really hit me and I was still in the dark about the ramifications of the illness. All I knew is that I wanted to sleep all of the time, Clay had to hold me when attempting to go up ruins or stepping off a sidewalk, my balance was really off, plus many other things. Who knew at the time it would be just a matter of time that I would find myself where I am now: in a fight for my life.
The picture on the blog is the last picture taken of me in Greece. I bought a leather bracelet there that you will see me wearing all the time. These are reminders to me that I will get back to Greece and Turkey some day in perfect health. Expect Miracles! Greece and Turkey...where Paul and I can take a journey together.
In my devotional book today called Streams in the Desert (don't you just love that symbolism?) the main verse is Acts 16:7: "When they came to the border of Mysian they tried to enter Bithynia, but the Spirit of Jesus would not allow them to."
Admittedly, I thought, "what in the world? How can they make a good lesson out of this verse?" A friend gave the book to me at the hospital on Sunday and is a true scholar of the Bible. Maybe he mixed the book up with one he was supposed to give it to - a friend that has much more insight into the Bible.
Seemed a pretty negative verse to me - after all Paul and his friends were just trying to get to the next destination to spread God's Word. What struck me was that Paul was mentioned -yet again popping up in my readings and thoughts. An example of this is from Twelve Extraordinary Men: He was not one of the 12 disciples but was an apostle He was an apostle "born out of due time." I like that.
All of this to get to the point of my fascination with Paul and his connection with Greece and Turkey:
We went on a family trip (Clay, me, Jared and Payne, my parents, and my brother and his family) to Greece and Turkey at the beginning of August. I should have had a wonderful time, but I could not. This was when the disease really hit me and I was still in the dark about the ramifications of the illness. All I knew is that I wanted to sleep all of the time, Clay had to hold me when attempting to go up ruins or stepping off a sidewalk, my balance was really off, plus many other things. Who knew at the time it would be just a matter of time that I would find myself where I am now: in a fight for my life.
The picture on the blog is the last picture taken of me in Greece. I bought a leather bracelet there that you will see me wearing all the time. These are reminders to me that I will get back to Greece and Turkey some day in perfect health. Expect Miracles! Greece and Turkey...where Paul and I can take a journey together.
boys
At night they get to randomly pick a passage out of their Kanakuk bibles to read. Tuesday night they randomly picked:
Luke 8:40-48
40 And it came to pass, that, when Jesus was returned, the people gladly received him: for they were all waiting for him.
41 And, behold, there came a man named Jairus, and he was a ruler of the synagogue: and he fell down at Jesus' feet, and besought him that he would come into his house:
42 For he had one only daughter, about twelve years of age, and she lay a dying. But as he went the people thronged him.
43 And a woman having an issue of blood twelve years, which had spent all her living upon physicians, neither could be healed of any,
44 Came behind him, and touched the border of his garment: and immediately her issue of blood stanched.
45 And Jesus said, Who touched me?When all denied, Peter and they that were with him said, Master, the multitude throng thee and press thee, and sayest thou, Who touched me?
46 And Jesus said, Somebody hath touched me: for I perceive that virtue is gone out of me.
47 And when the woman saw that she was not hid, she came trembling, and falling down before him, she declared unto him before all the people for what cause she had touched him, and how she was healed immediately.
48 And he said unto her, Daughter, be of good comfort: thy faith hath made thee whole; go in peace
I will be writing this on a post-it note tonight and hang on my vanity mirror: from the New Living Translation: Luke 8:48 "...your faith has made you well. Go in peace."
Take from this what you will but I believe God is touching Jared and Payne through this experience as well...
Luke 8:40-48
40 And it came to pass, that, when Jesus was returned, the people gladly received him: for they were all waiting for him.
41 And, behold, there came a man named Jairus, and he was a ruler of the synagogue: and he fell down at Jesus' feet, and besought him that he would come into his house:
42 For he had one only daughter, about twelve years of age, and she lay a dying. But as he went the people thronged him.
43 And a woman having an issue of blood twelve years, which had spent all her living upon physicians, neither could be healed of any,
44 Came behind him, and touched the border of his garment: and immediately her issue of blood stanched.
45 And Jesus said, Who touched me?When all denied, Peter and they that were with him said, Master, the multitude throng thee and press thee, and sayest thou, Who touched me?
46 And Jesus said, Somebody hath touched me: for I perceive that virtue is gone out of me.
47 And when the woman saw that she was not hid, she came trembling, and falling down before him, she declared unto him before all the people for what cause she had touched him, and how she was healed immediately.
48 And he said unto her, Daughter, be of good comfort: thy faith hath made thee whole; go in peace
I will be writing this on a post-it note tonight and hang on my vanity mirror: from the New Living Translation: Luke 8:48 "...your faith has made you well. Go in peace."
Take from this what you will but I believe God is touching Jared and Payne through this experience as well...
Wednesday, September 23, 2009
health care reform
How about doctor office reform? I never understand the repetitive paperwork. Has anyone seen the new scantron (think college) papers they have you fill out now? I think those tree people ought to go after the doctors.
I am still sitting here for my follow-up appointment with my liver doctor after taking 30 minutes to fill out the paperwork.
What do people with 2 broken arms do when they become new patients with doctors? Yes, that is indeed what I asked the lady. (Remember that old blog referring to my comment to the fast food window person? Obviously, today I am not taking heed of the "be patient" motto.)
I am still sitting here for my follow-up appointment with my liver doctor after taking 30 minutes to fill out the paperwork.
What do people with 2 broken arms do when they become new patients with doctors? Yes, that is indeed what I asked the lady. (Remember that old blog referring to my comment to the fast food window person? Obviously, today I am not taking heed of the "be patient" motto.)
Tuesday, September 22, 2009
liver transplant
At about 5pm last night I was discharged from the hospital. I apologize to anyone who may have gone up there afterwards and did not find me. When they told me I could leave, it took me about 10 minutes to pack before I practically ran to the door.
While I am very excited to be home - the hard work now begins. This will be a little dry but I am trying to answer your questions about where I am (and maybe I have misinterpreted some of the information but I am sure the doctor and I will be spending plenty of time together and he will straighten me out on anything I am not understanding). This will be helping me too in getting all of this straight in my head - and I thank you for the opportunity to help me do that. You may have a question, not an opinion or a recommendation unless you are a liver specialist, that I had not thought of and I can ask the doctor.
Obviously, there are more people who need a new liver than people can donate a liver, so to get a liver transplant is quite a process. My doctor is very strict about the people who he recommends get a new liver - which is very understandable. You only get one chance to get on the liver transplant list and you want to make sure you are prepared to be approved. This is a process that will take at least 6 months. For this time I will be evaluated on the following:
1) No more episodes. In other words no more stays at the hospital. Each time I spend time in the hospital is a mark against me. Most of what led me to this past stay was the fluid build-up (mostly caused by salt in my diet - I am new to this thing and learning about sodium) and getting adjusted to the new medications.
2) Another thing that can send me to the hospital is an virus or infection or a sickness that is commonly caught by people - BUT my immunities are very low and I do take medications for this problem. But I have to really watch who I am around and use a lot of anti-bacterial sops, wipes, etc.
Wouldn't you know that these 6 months fall right in the middle of flu season?
3) I need to slowly build my energy back up. When I need to rest, I rest. When I have energy is when I try my best to do my errands. I do try to stay off my feet too much because that leads to fluid build-up also. I have to pace myself.
If you see me walking with my IPOD or lifting some weights, I am just trying to build my muscle back up. One of the symptoms of liver disease is that it eats at your muscle. I also have to take Ensure to deal with this problem.
4) I am on many medications and will also continue to take them. Bloodwork will be taken often and monitored and the medications will be adjusted accordingly.
5) I MUST stick to a low sodium diet. This is very hard but crucial. I am learning all about what foods I am have sodium. Nutrition labels are crucial to me right now. I see dieticians also - but I am open to any recipes or places that specialize in this area and make individual meals for you.
This means bascially no eating eating out (so sad!) without eating beforehand or eating just the salad and fruit and sweets (can you believe there are a lot of these low in sodium?)
6) I will continue seeing my Christian guidance counselor and they have added a psychiatrist that specializes in liver transplant patients.
*** All of these appointments and my diet are closely monitored by my doctor (Dr. Galati - http://www.texasliver.com/en/cms/35/). If I miss appointments with any of the above people, it is reported to him and any breaks in my diet. This all goes in my record that then goes to the people who decide whether I should receive a new liver,
All that being said, I would like to avoid a transplant. I would love to keep my own liver and have a new liver go to someone else! I am currently only functioning with 20% of a liver. This is where you come in. Please pray for a miracles in all of these areas. I know you have and I thank you and let's keep it going!
Soon I will write another post soon about changing doctors and about receiving the news of a liver transplant.
P.S. I do have a "point person" now. If you would like that information, please email me.
While I am very excited to be home - the hard work now begins. This will be a little dry but I am trying to answer your questions about where I am (and maybe I have misinterpreted some of the information but I am sure the doctor and I will be spending plenty of time together and he will straighten me out on anything I am not understanding). This will be helping me too in getting all of this straight in my head - and I thank you for the opportunity to help me do that. You may have a question, not an opinion or a recommendation unless you are a liver specialist, that I had not thought of and I can ask the doctor.
Obviously, there are more people who need a new liver than people can donate a liver, so to get a liver transplant is quite a process. My doctor is very strict about the people who he recommends get a new liver - which is very understandable. You only get one chance to get on the liver transplant list and you want to make sure you are prepared to be approved. This is a process that will take at least 6 months. For this time I will be evaluated on the following:
1) No more episodes. In other words no more stays at the hospital. Each time I spend time in the hospital is a mark against me. Most of what led me to this past stay was the fluid build-up (mostly caused by salt in my diet - I am new to this thing and learning about sodium) and getting adjusted to the new medications.
2) Another thing that can send me to the hospital is an virus or infection or a sickness that is commonly caught by people - BUT my immunities are very low and I do take medications for this problem. But I have to really watch who I am around and use a lot of anti-bacterial sops, wipes, etc.
Wouldn't you know that these 6 months fall right in the middle of flu season?
3) I need to slowly build my energy back up. When I need to rest, I rest. When I have energy is when I try my best to do my errands. I do try to stay off my feet too much because that leads to fluid build-up also. I have to pace myself.
If you see me walking with my IPOD or lifting some weights, I am just trying to build my muscle back up. One of the symptoms of liver disease is that it eats at your muscle. I also have to take Ensure to deal with this problem.
4) I am on many medications and will also continue to take them. Bloodwork will be taken often and monitored and the medications will be adjusted accordingly.
5) I MUST stick to a low sodium diet. This is very hard but crucial. I am learning all about what foods I am have sodium. Nutrition labels are crucial to me right now. I see dieticians also - but I am open to any recipes or places that specialize in this area and make individual meals for you.
This means bascially no eating eating out (so sad!) without eating beforehand or eating just the salad and fruit and sweets (can you believe there are a lot of these low in sodium?)
6) I will continue seeing my Christian guidance counselor and they have added a psychiatrist that specializes in liver transplant patients.
*** All of these appointments and my diet are closely monitored by my doctor (Dr. Galati - http://www.texasliver.com/en/cms/35/). If I miss appointments with any of the above people, it is reported to him and any breaks in my diet. This all goes in my record that then goes to the people who decide whether I should receive a new liver,
All that being said, I would like to avoid a transplant. I would love to keep my own liver and have a new liver go to someone else! I am currently only functioning with 20% of a liver. This is where you come in. Please pray for a miracles in all of these areas. I know you have and I thank you and let's keep it going!
Soon I will write another post soon about changing doctors and about receiving the news of a liver transplant.
P.S. I do have a "point person" now. If you would like that information, please email me.
very important information!!!
At about 5pm last night I was discharged from the hospital. I apologize to anyone who may have gone up there afterwards and did not find me. When they told me I could leave, it took me about 10 minutes to pack before I practically ran to the door. Since then I have been trying to rest and get things done and spend time with the family.
It is great t0 be home, but please do not think that I am out of the woods. In fact, the work gets harder now to keep me alive.
Please bear with me. I have been working on an email, or post, that will explain where this is going now. There is so much to tell to help us all understand. I should have this done within the next few hours...
It is great t0 be home, but please do not think that I am out of the woods. In fact, the work gets harder now to keep me alive.
Please bear with me. I have been working on an email, or post, that will explain where this is going now. There is so much to tell to help us all understand. I should have this done within the next few hours...
Monday, September 21, 2009
my DQT today
Quotes (from Jesus Calling) from my DQT this morning:
"Do not try to rush this process, because hurry keeps your heart earthbound."
All you that know me know that I always want things done fast. Admittedly, I have been known to say to the attendant at a fast food window, "I thought this was fast food...obviously we have different interpretations of fast." (Okay - that sounds a lot nicer here than when I actually say it.)
Well, it is apparent God has a different approach to fast also:
"Lay your requests before Me and wait in expectation."
Why is it I want my food fast yet I am willing to wait for surprises? I love surprises. It is definitely my language of love. I am not talking about general surprises (like a Longchamp purse from a good friend or a trip to a spa in Phoenix from my husband - just kidding), it can be just an inspirational quote via email or phone call, a card, etc. - but a surprise of a show of support and love.
My Christian guidance counselor has said that when I overcome this hurdle a big surprise for me will be how many acquiantences and strangers I will become friends with and how many new people I will meet that will tell me they prayed for me when I was sick. I am looking forward to that surprise!
Maybe God loves surprises too. A surprise to give him is my patience right now. I need to be a patient with patience.
"Step back from the noise and activity of your busy life and listen humbly and quietly for His guidance. It may come when you least expect it."
Have a great week!
PS: I do have bones to stand on! I can actually see my bones in my feet and ankles. A nice surprise...
"Do not try to rush this process, because hurry keeps your heart earthbound."
All you that know me know that I always want things done fast. Admittedly, I have been known to say to the attendant at a fast food window, "I thought this was fast food...obviously we have different interpretations of fast." (Okay - that sounds a lot nicer here than when I actually say it.)
Well, it is apparent God has a different approach to fast also:
"Lay your requests before Me and wait in expectation."
Why is it I want my food fast yet I am willing to wait for surprises? I love surprises. It is definitely my language of love. I am not talking about general surprises (like a Longchamp purse from a good friend or a trip to a spa in Phoenix from my husband - just kidding), it can be just an inspirational quote via email or phone call, a card, etc. - but a surprise of a show of support and love.
My Christian guidance counselor has said that when I overcome this hurdle a big surprise for me will be how many acquiantences and strangers I will become friends with and how many new people I will meet that will tell me they prayed for me when I was sick. I am looking forward to that surprise!
Maybe God loves surprises too. A surprise to give him is my patience right now. I need to be a patient with patience.
"Step back from the noise and activity of your busy life and listen humbly and quietly for His guidance. It may come when you least expect it."
Have a great week!
PS: I do have bones to stand on! I can actually see my bones in my feet and ankles. A nice surprise...
Sunday, September 20, 2009
An important message from Beth about Dawn
Dear Friends:
I don't know if you have heard but our dear friend , Dawn Trozzo, who some of you will remember chaired EagleFest a couple of years ago, is ill and in need of a liver tansplant.
This week we will be meeting in the chapel (come and go) from 8-10am Monday through Friday (except Thursday it will be in Parlor B) to pray for a miracle in healing for her and her family. Please drop in to pray for this serious matter. If you have any other prayer warriors, would you please pass this on inviting them or ask them to pray for Dawn Trozzo and her family? (She welcomes, even covets, encouraging emails and prayers via email dwtrozzo@aol.com also).
Thank you.
She has a prayer pager with her and if you would call 713-200-0940 and follow the prompts. It will encourage her that she is not alone through this battle and she will know she is being prayed for.
Thank you again and please pass it on.
Beth Williams Lee
832-724-6111 mobile
713-467-7937 fax
I don't know if you have heard but our dear friend , Dawn Trozzo, who some of you will remember chaired EagleFest a couple of years ago, is ill and in need of a liver tansplant.
This week we will be meeting in the chapel (come and go) from 8-10am Monday through Friday (except Thursday it will be in Parlor B) to pray for a miracle in healing for her and her family. Please drop in to pray for this serious matter. If you have any other prayer warriors, would you please pass this on inviting them or ask them to pray for Dawn Trozzo and her family? (She welcomes, even covets, encouraging emails and prayers via email dwtrozzo@aol.com also).
Thank you.
She has a prayer pager with her and if you would call 713-200-0940 and follow the prompts. It will encourage her that she is not alone through this battle and she will know she is being prayed for.
Thank you again and please pass it on.
Beth Williams Lee
832-724-6111 mobile
713-467-7937 fax
Sunday morning at Methodist Hospital
Every weekday morning that we go to school. It is our alone time and I hope starts therir days positively. I have missed doing this while in the hospital.
So I got out out the devotional book we use to read today's devotionals and write down some things that I thought pertinent for them. The book is called Devos for Sports Fans (can't imagine the boys would like that :):)) by John and Kathy Hillman.
Today's devotional was about a guy who aspired to be an official in the game of football. He reached his dream - only to call a touchdown on the 5th yard line of the first game he officiated!
"Without the courage to make drams a reality, we might as well not dream."
Verse
Joshua1:9
"I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you whenever you go."
from the Life Applcation Bible
" Yes, be bold and strong! Banish fear and doubt! For remember, the Lord your God is with you wherever you go."
It is amazing how God works. What I thought was going to be a good life lesson turned out to be something that directly applies to me and what a wonderful verse to start the week!
On a side note - a specific prayer:
Jared has pulled a leg muscle. He is out for a few games in football (his favorite sport). Please pray for fast healing for him! I am worried that this might be too much change for him right now. Thank you!
So I got out out the devotional book we use to read today's devotionals and write down some things that I thought pertinent for them. The book is called Devos for Sports Fans (can't imagine the boys would like that :):)) by John and Kathy Hillman.
Today's devotional was about a guy who aspired to be an official in the game of football. He reached his dream - only to call a touchdown on the 5th yard line of the first game he officiated!
"Without the courage to make drams a reality, we might as well not dream."
Verse
Joshua1:9
"I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you whenever you go."
from the Life Applcation Bible
" Yes, be bold and strong! Banish fear and doubt! For remember, the Lord your God is with you wherever you go."
It is amazing how God works. What I thought was going to be a good life lesson turned out to be something that directly applies to me and what a wonderful verse to start the week!
On a side note - a specific prayer:
Jared has pulled a leg muscle. He is out for a few games in football (his favorite sport). Please pray for fast healing for him! I am worried that this might be too much change for him right now. Thank you!
Friday, September 18, 2009
my new digs
I have arrived at The Methodist Hospital at the Medical Center in Houston.
Yippee for WIFI!
Here is the contact information:
The Methodist Hospital
6565 Fannin Street
Houston, Texas 77030
713-790-3311
Room #427
I am still accepting visitors! I would be remiss in not stating this:
All of you that have come by have really lifted my spirits! Thank you very much for all of you that prayed with me when you came to my room. This is what it is all about: HIM. I can only beat this disease with God on my side. "Obey God's Word and be healed." Exodus 15:26 and the New Living Version Translation states "If you will listen carefully to the voice of the Lord your God and do what is right in his sight, obeying the commands and keeping all his decrees, then I will not make you suffer any of the diseases I sent on the Egyptians; for I am the Lord who heals you."I know this does not mean that just because I obey all of his laws from now on (as if anyone could ever do that because we are all sinners) but in the back of my mind it makes me wonder about the purpose this event is having in my life. Following Him closer, quitting all those nasty repetitive sins, and really digging into the Word is what I need to be doing: a sort of wake-up call. So the purpose of this disease is for me to really LIVE rather than die. Maybe my mission in life was always to help others in these instances (in whatever manner God has in store for me - and God has already got me thinking) and to help myself and others grow closer to Him.
My Christian Guidance counselor has a saying I am now stealing from him, "As long as I have a pulse, I have a purpose."
Yippee for WIFI!
Here is the contact information:
The Methodist Hospital
6565 Fannin Street
Houston, Texas 77030
713-790-3311
Room #427
I am still accepting visitors! I would be remiss in not stating this:
All of you that have come by have really lifted my spirits! Thank you very much for all of you that prayed with me when you came to my room. This is what it is all about: HIM. I can only beat this disease with God on my side. "Obey God's Word and be healed." Exodus 15:26 and the New Living Version Translation states "If you will listen carefully to the voice of the Lord your God and do what is right in his sight, obeying the commands and keeping all his decrees, then I will not make you suffer any of the diseases I sent on the Egyptians; for I am the Lord who heals you."I know this does not mean that just because I obey all of his laws from now on (as if anyone could ever do that because we are all sinners) but in the back of my mind it makes me wonder about the purpose this event is having in my life. Following Him closer, quitting all those nasty repetitive sins, and really digging into the Word is what I need to be doing: a sort of wake-up call. So the purpose of this disease is for me to really LIVE rather than die. Maybe my mission in life was always to help others in these instances (in whatever manner God has in store for me - and God has already got me thinking) and to help myself and others grow closer to Him.
My Christian Guidance counselor has a saying I am now stealing from him, "As long as I have a pulse, I have a purpose."
CHANGE OF PLANS!
I am moving to Methodist Hospital within the next 2 hours. It is a good thing that I will tell you about it later.
I just needed to get this post out so no one makes plans to come over to Memorial Hermann later today because I may already be gone.
As soon as I get to Methodist I will get you my information.
Additionally, the church has issued me a prayer pager. If you call it and the follow the instructions it will page me to let me know you have prayed for me! Thanks! #713-200-0940
I just needed to get this post out so no one makes plans to come over to Memorial Hermann later today because I may already be gone.
As soon as I get to Methodist I will get you my information.
Additionally, the church has issued me a prayer pager. If you call it and the follow the instructions it will page me to let me know you have prayed for me! Thanks! #713-200-0940
visiting
I have a procedure sometime this morning - they say 9am but you have to be flexible (another lesson being learned). The procedure actually just takes 5 minutes but it is prep time and then recovery time that will take a bit. I think everything should be pretty much done by noon and it should be calm around here the rest of the day and I would love to have you come by if you would like to!!! I love you all!
apologies
I promised to be posting items soon after I wrote that initial post - but time got away from me. I am truly blessed with all of my friends and family. Thank you! Many people have come by and and it has really helped me with my spirits.
Anytime I think of negative things I know it is the devil. I need to concentrate on God and His miraculous ways and not what that sinister Devil and his negativity.
Matthew 8:2,3 :It is God's will for you to be healed!
From Life Application Bible Matt 8:2,3 ""Look! A leper is approaching. He kneels before him, worshipping. "Sir," the leper pleads, "if you want to, you can heal me." Jesus touches the man. "I want to," he says. "Be healed." And instantly the leprosy dissapears. (My notes from a sermon by Dr. Young: 1) the leper was humble - I need to be humble and let God do His work. 2) the leper admitted his need - I am no longer cautious about asking for help and trying to go it alone - It is HIM that will provise the miracle not any kind of "works" on my part - 3) the leper recognized God's authority - Oh, how I do! This will only happen through Him and alone!!!)
NOTES FROM LIFE APPLICATION BIBLE: "We must realize our inability to cure ourselves and ask for Christ's saving help."
from Dodie Osteen's book Healed of Cancer: "It is not God who made you sick, it's the devil."
My sister-in-law, Jess Trozzo, brought me a great CD yesterday of praise music that I am listening to this morning while waiting on my procedure. Love it! I would love it if you would share any inspirational songs with me. It does not have to be Christian music - just give me inspiration. The past month I have been listening alot to the song by Miley Cyrus called "The Climb." How significant: I am going to climb this mountain and stand at the top and scream about God's love (and then I will go get a stone massage.)
Anytime I think of negative things I know it is the devil. I need to concentrate on God and His miraculous ways and not what that sinister Devil and his negativity.
Matthew 8:2,3 :It is God's will for you to be healed!
From Life Application Bible Matt 8:2,3 ""Look! A leper is approaching. He kneels before him, worshipping. "Sir," the leper pleads, "if you want to, you can heal me." Jesus touches the man. "I want to," he says. "Be healed." And instantly the leprosy dissapears. (My notes from a sermon by Dr. Young: 1) the leper was humble - I need to be humble and let God do His work. 2) the leper admitted his need - I am no longer cautious about asking for help and trying to go it alone - It is HIM that will provise the miracle not any kind of "works" on my part - 3) the leper recognized God's authority - Oh, how I do! This will only happen through Him and alone!!!)
NOTES FROM LIFE APPLICATION BIBLE: "We must realize our inability to cure ourselves and ask for Christ's saving help."
from Dodie Osteen's book Healed of Cancer: "It is not God who made you sick, it's the devil."
My sister-in-law, Jess Trozzo, brought me a great CD yesterday of praise music that I am listening to this morning while waiting on my procedure. Love it! I would love it if you would share any inspirational songs with me. It does not have to be Christian music - just give me inspiration. The past month I have been listening alot to the song by Miley Cyrus called "The Climb." How significant: I am going to climb this mountain and stand at the top and scream about God's love (and then I will go get a stone massage.)
Thursday, September 17, 2009
There is no easy way to say this...
The doctor just came to speak to my Mom and me. I was fully expecting good news because I feel so much better Really - ask anyone who has been up here).
While I have not gotten worse in the hospital - I have not gotten any better. I am most likely have to have a liver transplant because 80% of my liver is unusable. The doctor says I am literally on the brink of death and the next few weeks are crucial. WE HAVE TO PRAY FOR A MIRACLE RIGHT NOW. I must be here for my husband and my boys!
I hate having to do this via a blog or an email but I thought it best to get the news out as soon as possible. I have so much follow-up to say that will be coming in spurts but please pray now.
Many of you have called or emailed asking if you could come by and visit - and I would love for you to. I WOULD LOVE TO SEE YOU! Right now I am only scheduled for one procedure in the morning (none today except a blood transfusion and I am in my room for that and bored) so that may be the only time I will not be in the room. PLEASE PLEASE PLEASE though - come in a spirit of happiness and prayer. I do not want to be asked questions. I want to enjoy everyone's company. I do not want to turn this into a crying deal. The stress will just hurt me more.
Again, I am sorry it had to come out his way but I covet your prayers now! Please watch for constant blogs (I am going to assume you are reading the blogs - but if you cannot or wish not, please send me your email address - even though I obviously already have it - but I want to make this easier) and I will start a master email list).
So many things to still say...I had a great DQT and will share with you later...EXPECT MIRACLES!!!
While I have not gotten worse in the hospital - I have not gotten any better. I am most likely have to have a liver transplant because 80% of my liver is unusable. The doctor says I am literally on the brink of death and the next few weeks are crucial. WE HAVE TO PRAY FOR A MIRACLE RIGHT NOW. I must be here for my husband and my boys!
I hate having to do this via a blog or an email but I thought it best to get the news out as soon as possible. I have so much follow-up to say that will be coming in spurts but please pray now.
Many of you have called or emailed asking if you could come by and visit - and I would love for you to. I WOULD LOVE TO SEE YOU! Right now I am only scheduled for one procedure in the morning (none today except a blood transfusion and I am in my room for that and bored) so that may be the only time I will not be in the room. PLEASE PLEASE PLEASE though - come in a spirit of happiness and prayer. I do not want to be asked questions. I want to enjoy everyone's company. I do not want to turn this into a crying deal. The stress will just hurt me more.
Again, I am sorry it had to come out his way but I covet your prayers now! Please watch for constant blogs (I am going to assume you are reading the blogs - but if you cannot or wish not, please send me your email address - even though I obviously already have it - but I want to make this easier) and I will start a master email list).
So many things to still say...I had a great DQT and will share with you later...EXPECT MIRACLES!!!
Wednesday, September 16, 2009
done with transfusions
I am finally done with my tranfusions and things seemed to have gone well. Please pray that tomorrow brings good news and I can break outta here!
blood transfusion has begun
I was mistaken. My procedure was to happen in 5 minutes - not take 5 minutes. In fact, it will probably not be until 1am that this transfusion is done. So far, so good.
But I should take the time now to let you know to "give blood." I am not talking about for me immediately but in the future. It benefits me and all my buddies here in the hospital when we need these transfusions. If you decide to go to the Houston Blood Bank be sure to give them my name and DOB (2/18/69) and they will credit me.
Thanks.
But I should take the time now to let you know to "give blood." I am not talking about for me immediately but in the future. It benefits me and all my buddies here in the hospital when we need these transfusions. If you decide to go to the Houston Blood Bank be sure to give them my name and DOB (2/18/69) and they will credit me.
Thanks.
procedure done
The procedure is done! Yippee! They did not give me any drugs or anything so my recovery should be short for this procedure.
They 2 liters of liquid from me and that is making me feel better already. The liquid is going for tests but the doctor says he thinks I have an infection which is not uncommon among liver patients.
So today:
1) antibiotics
2) all my usual medications
3) this afternoon they will be giving me blood (rather than the usual 8 viles of blood they take from me). My body is not reproducing blood correctly. (Please forgive me if you are a doctor and I am mis-stating things.)
So this will be what they are monitoring right now. Please pray that all this works and I will be out of here Friday.
I am feeling good so feel free to email me or come on by!
They 2 liters of liquid from me and that is making me feel better already. The liquid is going for tests but the doctor says he thinks I have an infection which is not uncommon among liver patients.
So today:
1) antibiotics
2) all my usual medications
3) this afternoon they will be giving me blood (rather than the usual 8 viles of blood they take from me). My body is not reproducing blood correctly. (Please forgive me if you are a doctor and I am mis-stating things.)
So this will be what they are monitoring right now. Please pray that all this works and I will be out of here Friday.
I am feeling good so feel free to email me or come on by!
yet another post
Are you sick of my posts yet? There might be many as I have alot of time on my hands - and I really need to keep occupied until noon because I cannot eat or drink anything until then.
I just had my quiet time. Some verses or items I read have stuck with me. There are many but I will share a few:
"You made all the delicate, inner parts of my body, and knit them together in my mother's womb. Thank you for making me so wonderfully complex!...Your workmanship is marvelous...You saw me before I was born and scheduled each day of my life before I began to breathe." Psalms 139: 13-16 Life Application Bible
I cannot help but feel at ease because of this passage. God knows - and I hope he will lend his handiwork to the doctors - what is going on inside my body. Let a miracle come to me through God's and the doctor's hands and get rid of this disease!
I just had my quiet time. Some verses or items I read have stuck with me. There are many but I will share a few:
"You made all the delicate, inner parts of my body, and knit them together in my mother's womb. Thank you for making me so wonderfully complex!...Your workmanship is marvelous...You saw me before I was born and scheduled each day of my life before I began to breathe." Psalms 139: 13-16 Life Application Bible
I cannot help but feel at ease because of this passage. God knows - and I hope he will lend his handiwork to the doctors - what is going on inside my body. Let a miracle come to me through God's and the doctor's hands and get rid of this disease!
procedure
I wish I had details - but I am really one of those people that the less I know the better. They are about to come to get me for the procedure. Please pray it goes smoothly and that it is the only procedure I will have to go through while I am here.
I REALLY want to get out of this hospital sooner than later - and never come back! I miss my husband, my boys, my cat (and yes even my dog) - and just home in general.
Thanks for your prayers. I will keep you updated!
I REALLY want to get out of this hospital sooner than later - and never come back! I miss my husband, my boys, my cat (and yes even my dog) - and just home in general.
Thanks for your prayers. I will keep you updated!
Tuesday, September 15, 2009
hospital
This will be going in an email to my non-blogger friends, so forgive me for repeating the blog website:
I have WIFI so check the blog! http://dawnshealth.blogspot.com
Remember: you do not have to "comment " on my actual blog. You can just take a look at it and email me.
I am checked into the hospital now. I am in room 1056. The phone number and the address of the hospital are as follows:
Memorial Hermann Southwest Hospital
7600 Beechnut, Houston, TX 77074
713-456-5000
(But my cell phone works here, so if you would like to call, please call it. This phone in the room is OUTRAGEOUSLY loud!)
Many people have asked if they can come by. I cannot answer that questions yet. It is kinda a small room and I have not had any procedures done yet so I do not know how I will be feeling.
Thank you to everyone for your prayers! Still my biggest request: Relief and that I can get out of here quickly!
I have WIFI so check the blog! http://dawnshealth.blogspot.com
Remember: you do not have to "comment " on my actual blog. You can just take a look at it and email me.
I am checked into the hospital now. I am in room 1056. The phone number and the address of the hospital are as follows:
Memorial Hermann Southwest Hospital
7600 Beechnut, Houston, TX 77074
713-456-5000
(But my cell phone works here, so if you would like to call, please call it. This phone in the room is OUTRAGEOUSLY loud!)
Many people have asked if they can come by. I cannot answer that questions yet. It is kinda a small room and I have not had any procedures done yet so I do not know how I will be feeling.
Thank you to everyone for your prayers! Still my biggest request: Relief and that I can get out of here quickly!
doctor
I wish I had good news - but I do not. I am on my way to check into the hospital now. Memorial Hermann Southwest. I should be there until at least Friday (please pray no more than that).
This is to relieve the edema. They are going to drain the fluid.
I will keep you posted via blog (I will just have to figure out if there is WIFI in my room, etc. Otherwise, I will try emailing.
This is to relieve the edema. They are going to drain the fluid.
I will keep you posted via blog (I will just have to figure out if there is WIFI in my room, etc. Otherwise, I will try emailing.
middle of the night
I am up. I got so much done yesterday. In all honesty, I wanted to get a lot of things done because I wanted to keep my mind off of going to the doctor today. Don't get me wrong, I am very happy with my liver specialist - I would just like to know I am making some progress. I know it has only been 13 days since I took the first pills but it seems so much longer and I am not very patient (neither are those closest to me). Please pray for all of us to be patient and to continue to do "just what the doctor ordered".
Sunday, September 13, 2009
out of control
The swelling has gotten out of control. It is now moving to my face (which admittedly has made me very sad today).
I did spend alot of time on my feet today because I had alot of energy. I just got out of my leg tights and the itching was so bad on my the back of my calves that I itched lines of blood.
Now I have them up and iced and need your prayers.
Thank you.
I did spend alot of time on my feet today because I had alot of energy. I just got out of my leg tights and the itching was so bad on my the back of my calves that I itched lines of blood.
Now I have them up and iced and need your prayers.
Thank you.
Cankles and what???
I know it may not seem like it because of the time I sent my blog last night but I am sleeping better these days - really! I am not sure if it because I have been wearing myself down or getting used to these meds but I like it!
Okay, okay, it is time to come clean: I don't just have cankles. I do not have a "cute" word for it - yet. But I feel I should prepare you. I have some swelling in my belly. No - not just swelling... I look like I am a good 8 months pregnant. This goes along with the cankles (caused by the disease).It is very uncomfortable - and a bit embarassing.
People I do not know tell say things like "good luck with your baby" or "when are you due?
"Here is where you come in: any good comebacks (if any)? (Careful people!). In general it does not bother me because I know it is just one thing I have to deal with - but it might be fun to think about responses.
On the physical ailment note: a friend suggested I make a picture book chronicling all these things that will eventually get me to good health (God willing). So don't be surprised if you are asked to take a pic with me with your small ankles and bellys (only exception being Amy when she begins showing her pregnancy - anyone else have anything to tell me?).
Wow - missing a couple of days of blogs really leads to a lot to say...
Okay, okay, it is time to come clean: I don't just have cankles. I do not have a "cute" word for it - yet. But I feel I should prepare you. I have some swelling in my belly. No - not just swelling... I look like I am a good 8 months pregnant. This goes along with the cankles (caused by the disease).It is very uncomfortable - and a bit embarassing.
People I do not know tell say things like "good luck with your baby" or "when are you due?
"Here is where you come in: any good comebacks (if any)? (Careful people!). In general it does not bother me because I know it is just one thing I have to deal with - but it might be fun to think about responses.
On the physical ailment note: a friend suggested I make a picture book chronicling all these things that will eventually get me to good health (God willing). So don't be surprised if you are asked to take a pic with me with your small ankles and bellys (only exception being Amy when she begins showing her pregnancy - anyone else have anything to tell me?).
Wow - missing a couple of days of blogs really leads to a lot to say...
bad girl
It has been a long few days. That is why I haven't been writing on my blog.I cannot say that is because I have been feeling bad ):):): because I have been out and about. While it will probably keep me laid up later today (it has caught up). I did get a chance to hang out with some old, and some new, friends. All have been so sweet and encouraging! However, this has put me behind on my health and prayer journals. Am I allowed to take a break for a couple days (none of that is required but I like to do it)?
Thursday, September 10, 2009
big decision
I made a big decision regarding my work load today. I do not feel it is right to get into detail here - but I wanted to let you know that I put alot of prayer and asked for Christian guidance over the decision.
This illness has really caused me to prioritize. At one time I used to say yes to everything. I just cannot do that anymore. Actually good has come of it: when I sit down with the boys in the afternoon or go to their scrimmages, etc. my mind is focused on them, not wandering everywhere else on all the other petty things I thought I had to do.
This is truly a learning experience - a good one even though sometimes things look bleak.
This illness has really caused me to prioritize. At one time I used to say yes to everything. I just cannot do that anymore. Actually good has come of it: when I sit down with the boys in the afternoon or go to their scrimmages, etc. my mind is focused on them, not wandering everywhere else on all the other petty things I thought I had to do.
This is truly a learning experience - a good one even though sometimes things look bleak.
internet connection
Boy did I want to post on this blog last night, but I am having problems with my connection so I need to write now while I can. It sounds petty, but please pray for this connection and that it keeps up. I have a lot to do on the internet ans want to knock it out for my mental well-being. So little time and so many things to do.
I have a feeling it is going to be a great day. Clay let me sleep in and I plan on sitting here in my recliner most of the day to get the swelling down. It is already working. God is still teaching me to slow down.
As long as this connection keeps up today, I will post more. I have an appointment with my Christian guidance counselor today at noon. I am really looking forward to it. I have some big decisions to make.
Talk soon...
I have a feeling it is going to be a great day. Clay let me sleep in and I plan on sitting here in my recliner most of the day to get the swelling down. It is already working. God is still teaching me to slow down.
As long as this connection keeps up today, I will post more. I have an appointment with my Christian guidance counselor today at noon. I am really looking forward to it. I have some big decisions to make.
Talk soon...
Tuesday, September 8, 2009
I am sorry
I apologize for my earlier rant. I think I needed to write it to get myself an attitude adjustment. It has been only about a 1/2 hour since I wrote the "paying the price" post but I already feel better. I am not sitting in my recliner with ice on my cankles and trying to wipe some items off my to-do list. And I have 2 horse pills down - 2 more to go and then 5 tablets (a light day).
My prayer is that tomorrow will be a good day!
My prayer is that tomorrow will be a good day!
paying the price
I had been having such a good week. I had so much energy and my cankles had gone down a bit. Right now I am miserable: tired and my cankles are HUGE. Picture a watermelon with little 5 LITTLE olives sticking out. OUCH! On top of that: I could eat us out of house and home. Someone could offer me cardboard with some chocolate sauce on it and I would eat it. All this leads to me being very tired and close to tears. I almost had a breakdown with Clay earlier and feel bad for it.
Please pray I get some energy and some comfort.
Thank you.
Please pray I get some energy and some comfort.
Thank you.
Monday, September 7, 2009
Labor Day
My sweet husband bought me a new recliner today. It is awesome!!!
In fact, right now I am sitting in it, working on my computer and eating some DELICIOUS banana bread a sweet friend baked for me.
The question now: how is Clay going to get me out of this chair because it is so comfortable I may not leave it.
In fact, right now I am sitting in it, working on my computer and eating some DELICIOUS banana bread a sweet friend baked for me.
The question now: how is Clay going to get me out of this chair because it is so comfortable I may not leave it.
Girls: Encouragement Party - Save the date!
Some friends are giving me an "encouragement party" on September 19, 2009 from 4:30pm until 6:30pm at my house. It will be a very casual come and go open house. Light appetizers will be served (so you can then go grab some dinner).
I wanted to let you know because I would really like to see you!
There will be more details to come from my friends (either through email or snail mail). Hope to see you then!
Dawn
P.S. Once again, there is a very good chance I have accidentally left someone off this list. Please feel free to pass it on. The more the merrier!
I wanted to let you know because I would really like to see you!
There will be more details to come from my friends (either through email or snail mail). Hope to see you then!
Dawn
P.S. Once again, there is a very good chance I have accidentally left someone off this list. Please feel free to pass it on. The more the merrier!
Sunday, September 6, 2009
timing
Many of you know how much a care about being on time everywhere I go. Well, I am learning a lesson.
When you are sick, it seems like things take twice as long to get done so I have been late so many times. It can be very frustrating.
I feel like I have spent so much time just preparing to be prepared. For instance: I can't leave the house for the day without my daytime pills. So I have had to put a ziploc next to my blackberry so I do not forget to take them with me. I call things like this "triggers." But just getting the triggers in place has taken a long time.
Another adjustment...
When you are sick, it seems like things take twice as long to get done so I have been late so many times. It can be very frustrating.
I feel like I have spent so much time just preparing to be prepared. For instance: I can't leave the house for the day without my daytime pills. So I have had to put a ziploc next to my blackberry so I do not forget to take them with me. I call things like this "triggers." But just getting the triggers in place has taken a long time.
Another adjustment...
cankles
I may be working on very little sleep right now - but I can see my ankles. Woo-hoo!
Please just pray that I do not try to overdo it just because I think I am doing better.
Please just pray that I do not try to overdo it just because I think I am doing better.
Saturday, September 5, 2009
pills
It is a light night - only 9 pills tonight. A new medication makes me very drowsy. So if you get any weird emails from me in the next few hours, please ignore them. :):):)
Still pretty swollen today. Stayed at home all day TRYING to get organized and leaving me feet up.
Still pretty swollen today. Stayed at home all day TRYING to get organized and leaving me feet up.
blogs in general
I had a thought this morning. Is doing this being selfish? It seems odd that I am just writing about myself while not be able to talk to all of you and see what is going on with you. If you wouldn't mind, please email me and keep me posted on YOU.
Maybe what brought this up is because I hadf such a big day yesterday and so much to say and I don't want to bore you.
So for now I will just continue with the blog yesterday about the horse pills. Remember how excited I was about getting ready for the pills of potassium rather than drink the horrible liquid, Boy I am glad I ordered those pills...because...
I get a call yesterday afternoon from my doctor. He got in some blood results and he called to tell me to DOUBLE my dosage of...you got it...potassium.
Maybe what brought this up is because I hadf such a big day yesterday and so much to say and I don't want to bore you.
So for now I will just continue with the blog yesterday about the horse pills. Remember how excited I was about getting ready for the pills of potassium rather than drink the horrible liquid, Boy I am glad I ordered those pills...because...
I get a call yesterday afternoon from my doctor. He got in some blood results and he called to tell me to DOUBLE my dosage of...you got it...potassium.
Friday, September 4, 2009
medicine
I am feeling refreshed today. And my Mom is finally home. Yippee!
This potassium they gave me to take is in liquid form. Imagine taking bubble bath, butane and cascade and mixing together and take a shot of it every night. Guess what? That is what potassium tastes like. So I went to my pharmacist this morning and begged for it in the form of tablets. He said: "they are horse pills." I said it did not matter if they were big enough to choke an elephant, I would rather have them ... they will be ready this afternoon.
This potassium they gave me to take is in liquid form. Imagine taking bubble bath, butane and cascade and mixing together and take a shot of it every night. Guess what? That is what potassium tastes like. So I went to my pharmacist this morning and begged for it in the form of tablets. He said: "they are horse pills." I said it did not matter if they were big enough to choke an elephant, I would rather have them ... they will be ready this afternoon.
Thursday, September 3, 2009
Wednesday, September 2, 2009
UGH!
My ankles are as big, if not bigger than my neck. I will be bedridden tomorrow - luckily no meetings and I can sit with my feet up and work from bed.
counselor
I saw my Christian counselor today. It was awesome! He just battled cancer ( that he very nearly lost to) and he has some great things for me to think about. More refreshment for the day. God is good.
sleep
The doctor had given me permission to take Benadryl for my insomnia. I did not have to take it. All the medication helped that last night. I laid down thinking I would be up in a minute. I slept pretty much 6 hours straight! Yes, it is early but I feel refreshed!
Tuesday, September 1, 2009
todays appointment
No bad news - but no good news. My latest round of bloodwork came in and the doctor knows which direction to go in with my medications - each targeting separate issues such as lack of potassium, fighting immunities, blood clotting etc. There will be 6 medications in all. How they will will affect me is anybody's guess. Just don't look at me weird if I am walking around like a zombie. :):):) All the other things: like bedrest, watching my sodium etc. still stands. Thanks for your continued prayers.
big day
Thank you to all who have already signed up as a follower. Today is a big day for me. I have a follow-up appointment at the liver specialist. Please pray for me. While I do not expect a miracle, I would at least like to know that we are moving along and the disease is not progressing.
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